THE BELOW IS A LINK TO A VIDEO MADE MY HER HUSBAND DISCUSSING HER PASSING https://imagestash.pics/L97YS4
Read MoreHospice and Marriage
My disease recently progressed a lot, leaving me with a difficult decision, deciding to go on hospice. This lovely man is my best friend, and together we are going to […]
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Nice to Meet You!
Hi! My name is Rose and I’m living a joyful life with Stiff Person Syndrome Plus Dysautonomia. I’m here to raise awareness, spread smiles, and bring joy.
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Respiratory Failure
Over the years, my lung function has continually worsened. At first I needed a bipap at night, before long I started needing it during the day as well and was […]
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Hair Loss Journey
Losing my hair was incredibly difficult. After many bouts of sepsis, my body decided other things were more important. I was devastated. But through losing my hair I’ve discovered many […]
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